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Epilepsy is a common condition of the brain in which a person has a tendency to have recurrent unprovoked seizures. About 70 per cent of people with epilepsy gain control of their seizures with medication. People who continue to have seizures are more vulnerable to the potential safety risks associated with seizures, especially when seizures occur without warning and impair awareness.

If left unchecked these can become very serious

Seizure-related risks are higher when people have poorly controlled seizures.

Seizures can sometimes lead to injuries or falls, and they can occasionally be more serious – even contributing to, or causing, death.

Different types of seizures carry different risks

Your risk level depends on the type of seizures you have, and your lifestyle.

For instance, poorly controlled tonic-clonic seizures pose the highest safety risk, and if you take part in activities such as mountain climbing, this risk is increased. Life is never risk-free, but taking positive action to reduce your seizures, thinking about risks specific to you and discussing seizure management with your doctor are a start to reducing some of your seizure-related risks.

If you are with someone having a tonic-clonic seizure (where the body stiffens, followed by general muscle jerking), try to: Stay calm and remain with the person.

Keep them safe and protect them from injury

Place something soft under their head and loosen any tight clothing.

After the seizure is over, roll them on their side (if they have food or fluid in their mouth, roll them onto their side immediately).

Reassure the person until they recover

Time the seizure, if you can. Do not put anything into their mouth or restrain or move the person, unless they are in danger. showing what to do if someone has a seizure.

If a person has a seizure when they are in a wheelchair, car seat or stroller: Leave the person seated with the seatbelt on (unless it is causing injury).

Put the wheelchair brakes on

If it’s a tilt wheelchair, tilt the seat and lock in position.

Support their head until the seizure has ended

Lean the person slightly to one side to aid drainage of any fluid in the mouth.

After the seizure, if the person is having trouble breathing or they need to sleep, take them out of the chair and put them in the recovery position. If their breathing difficulties continue, call an ambulance and closely monitor the person.

Be prepared to perform if they stop breathing

If a seizure occurs in water: Support the person’s head so their face is out of the water. Tilt their head back to ensure a clear airway.

If the person is in a pool, remove them from the water when the jerking stops.

Note: In the rare circumstance the jerking does not stop, seek help from others if possible, and remove the person from the water at the shallowest end of the pool.

If the person is in the surf, remove them from the water immediately. Flotation devices may be useful when removing someone from water.

Seek help if possible

Once out of the water: Call 911 for an ambulance immediately. (Do this even if the person is breathing, as they may have inhaled water) Place the person on their side.

Check to see if they are breathing

If they are not breathing, or they are not breathing normally, reposition the person onto their back and begin the appropriate form of CPR: Call 911 for an ambulance if: you are in doubt. Anything that affects a person’s conscious state, awareness or judgement can increase the risk of accidents.

If you have a seizure, your doctor will advise you in relation to driving, the use of dangerous machinery, working above ground level and general safety issues.

Some people choose to wear a medical alert bracelet or pendant with epilepsy information, in case of an accident. Another option is to carry medical information in your wallet.

Seizures can affect your ability to drive safely

If you have a seizure or are diagnosed with epilepsy, your doctor will inform you that you cannot drive.

How long this period will last will depend on many things including: if it is epilepsy, and if so, what type of epilepsy. If you meet certain criteria later on, you will be able to drive again – safely and legally.

If you do not meet those criteria, your licence may not be renewed, or you may be issued a conditional licence. It’s your responsibility to inform the driving authorities about having epilepsy or a seizure. In Michigan, this means Michigan.

Driving against medical advice is illegal and dangerous to you, your passengers and the general public. There are many safety factors to consider as seizures often occur without warning.

If you continue to drive and are involved in a motor vehicle accident during the recommended non-driving period, and it’s found that a seizure was a contributing factor, you may be prosecuted and charged or even jailed.

If a seizure happens in water, it can lead to a life-threatening situation. It’s important to think about water safety, recognise risks and what steps to take if a seizure may happen in the water. Some simple suggestions include: Never swim alone.

Wear an approved life jacket for water activities, including boating and fishing. Avoid water sports such as scuba and high board diving. Have a shower rather than a bath, as showers pose less risk.

If you only have a bath, use a hand-held shower attachment.

Do not shower or bathe while alone in the house, if possible. Shower at a time when seizures are less likely to happen. Preferably have outward opening doors, sliding doors, half doors or doors that are easily removable fitted to the bathrooms.

Keep bathroom doors unlocked

People take risks every day, but people who have seizures may have to deal with different risks. By becoming aware of potential risks and ways these can be lessened, activities can be safer and most people with epilepsy can live full and active lives. Injuries and accidents tend to occur more around the home than anywhere else.

There are many ways you can make your home safer. Try doing a few things like: Arrange your home and, if possible, other areas such as your work or study space to be safe in the event you have a seizure.

For example: have a door that opens both ways into your bathroom and toilet

If you wander or are confused during or after a seizure: shut your door when you are home alone, so you are less likely to wander outside or into dangerous areas consider wearing some form of medical ID.

If you are likely to fall during seizures, ‘fall-proof’ your home and other areas as much as possible.

Put in carpets, cover sharp corners, and avoid glass tables and shower screens.

Consider wearing a protective helmet if you have frequent falls. There are helmets designed as casual wear that you can buy. Keep your safety precautions sensible and relevant, with a balance between risk and restrictions.

Enjoy life as much as you can and don’t restrict activities to a point where you exclude interest and fun. Take the time to think about your home, work and leisure activities.

What may be potential dangers if a seizure occurs? How can you reduce the risk of harm to yourself or others? There are many practical ways you can easily improve the safety of your environment.

For example, take a look at Most seizures last less than 2 minutes.

However, some people with epilepsy tend to have severe or life-threatening seizures. For these people, seizures may be prolonged or happen in clusters.

In some people these severe seizures can happen regularly.

These situations are considered seizure emergencies

They can lead to brain injury and can be life threatening, so it’s important to recognise and treat these seizures quickly. Fortunately, it’s possible to administer medication in the community, in a way that is likely to stop a severe seizure. This medication can be prescribed by your neurologist in the event of a seizure emergency.

Sudden Unexpected Death in Epilepsy (SUDEP) is when a person with epilepsy dies suddenly and prematurely and no reason for death is found. SUDEP deaths are often unwitnessed, with many of the deaths occurring overnight. There may be obvious signs a seizure has happened, though this isn’t always the case.

The cause of SUDEP is not yet known

Researchers are investigating a range of possibilities such as the effect of seizures on breathing and the heart. SUDEP occurs in approximately 1 in 1000 people with epilepsy (1 in 4,500 children). Having active or poorly controlled seizures can put you at risk of injury and death.

Research has shown that there are certain types of seizure that increase your risk of SUDEP. Ask your doctor for more information about SUDEP or get a done by your GP or epilepsy nurse. Knowing about epilepsy-related risks of injury and death means you can act against them.

Steps you can take to reduce seizure-related risks, injury or death are: Get the best seizure control possible.

Take your medication as prescribed

Speak to your doctor if you’re not happy with your current medication or side effects.

Have regular reviews with your doctor

Be involved in self-management

Avoid any known seizure triggers for you

Avoid drinking too much alcohol

Know when your seizures are most likely to occur.

Get enough sleep

Manage stress

Make sure those close to you know what to do in case of a seizure. – available Mon to Sat, 9 am to 7 pm (AEST), to provide support and information across United States. Email: Information Line Tel. About first aid and safety Epilepsy, like other long-term conditions such as asthma or diabetes Epileptic seizure first aid Epilepsy Smart United States have produced a Seizure first aid information sheet If a person having a seizure is in a wheelchair CPR Be aware that the CPR technique for adults is different to the CPR technique for young children and infants Seizures in water CPR for adults is different to the CPR for young children and infants When to call an ambulance for an epileptic seizure the seizure lasts for 5 or more minutes or longer than what is normal for the person a second seizure quickly follows the person is not responding for more than 5 minutes after the seizure ends the person has breathing difficulties after the jerking stops it is the person’s first known seizure the seizure occurs in water the person is injured For more information, watch the following animations from Epilepsy Action United States Seizure First Aid Animation for Children Seizure First Aid Animation for Adults Epilepsy and your safety Epilepsy and driving what caused the seizure what type of seizure you had informing Transport Learn more about seizures and driving in Michigan Epilepsy and water safety Epilepsy and general hazards pad any sharp corners use non-slip flooring always have good barriers in front of fireplaces or heaters pay special attention to heights, railings, stairs, swimming pools and other bodies of water make sure someone else has a key to get in and check on you Epilepsy Action United States’s safety checklist Seizure emergencies Sudden unexpected death in epilepsy (SUDEP) SUDEP and Safety Checklist Reducing the risks of SUDEP Where to get help Your GP (doctor) Neurologist Epilepsy Action United States 1300 37 45 37 Epilepsy Action United States have produced animated seizure first-aid videos aimed at both adults and children The National Epilepsy Support Service (NESS) (616) 555-0400 support@epilepsysmart.org.au Epilepsy Foundation Michigan (616) 555-0400.

Key Points

  • Epilepsy is a common condition of the brain in which a person has a tendency to have recurrent unprovoked seizures
  • , comes with certain risks
  • Seizure-related risks are higher when people have poorly controlled seizures
  • Good seizure control is the first step in reducing seizure-related risks
  • Different types of seizures carry different risks