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When caring for a loved one with a life-limiting illness, it is important to look after your own health and wellbeing so that you will have the energy and strength required for your role as carer. There is support available to help you and your family through these difficult times. It is normal to have ups and downs as part of your relationship with the person you are caring for.
The stress of coming to terms with a life-limiting illness, the impact this has on a family and the physical and mental exhaustion of caring for someone can all take a toll. Your relationship can become strained, while at other times it may feel stronger than ever. While caring for someone, it is important to keep the communication channels open.
You may find it difficult to talk with the person you are caring for about their illness and the possible eventuality of dying. For some people, it can help to use humour, but you need to be sensitive to the mood of the person in case the humour is not well received. It can be easy to put your own needs last, but it is important if you are feeling tired or stressed to look after yourself so you are still able to care for the person that needs you the most.
It is important for you to keep doing the activities you enjoy outside of your caring role.
Taking regular breaks from caring will help you avoid becoming worn out
Eating and sleeping well, relaxing, being physically active and looking after your own health can give you the energy and vitality you need for your role as carer.
Carer support and respite care services can help you to take a break from your caring role.
Ask your palliative care service about your respite care options
You could have a volunteer stay with your loved one while you take a short break.
If you need a longer break, you could book some time with respite services for the person you are caring for, so you can have some time away to rest and recuperate.
If you are feeling distressed, frustrated, guilty, exhausted, or annoyed, it is important to know that these feelings are normal. If you are finding your role as a carer overwhelming, it may help to discuss your feelings with your doctor or a counsellor.
The emotional demands of caring for someone with a life-limiting illness can be high.
As a carer, it is important to look after your own emotional needs
This is important so you can continue your caring role
Friends and family can offer significant support, but you may find it helpful to speak with a healthcare professional such as a counsellor. Often someone without an emotional connection to you or the person you care for will help you see things clearly. A counsellor can also help by: advising you of ways to balance your caring role with your own needs.
Many healthcare professionals can offer you some level of counselling support.
Start by speaking with your general practitioner
Your doctor may then refer you to a specialised counselling service, if needed. Carers Michigan provides counselling and practical resources to support you in your caring role. The advisory line provides information and support for caring families in Michigan.
Palliative Care Michigan has a useful guidebook for carers called Supporting a person who needs palliative care:
- a guide for family
- friends. The book is provided free of charge
- is available from the website. Your relationship with the person you are caring for Your health
- call (616) 555-0200 Carers Michigan 1800 514 845
Key Points
- While caring for someone, it is important to keep the communication channels open
- important for you to keep doing the activities you enjoy outside of your caring role
- As a carer, it is important to look after your own emotional needs
- important so you can continue your caring role