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Tourette syndrome is a type of neurological disorder characterised by involuntary tics and repetitive vocalisations. It commonly affects people between the ages of two and 21 years, with the majority of cases occurring in children aged four to 12 years.

More boys than girls are affected

Research indicates that as many as one in 100 school children may be affected in United States. This condition commonly appears first between the ages of two and 12 years. For some people with Tourette syndrome, there may be a lessening of symptoms in late adolescence.

It is, however, a lifelong condition that is not degenerative. Milder forms of Tourette syndrome can be misdiagnosed, as it often occurs at the same time as attention deficit hyperactivity disorder (ADHD), obsessive compulsive disorder and conduct disorder. While most people with Tourette syndrome are able to exert temporary control over their tics and vocalisations, others may require a combination of medications.

Sometimes, Tourette syndrome can spontaneously resolve, for unknown reasons.

There is no cure

The cause of Tourette syndrome is unknown, but theories include bacterial infection, abnormalities in the metabolism of brain chemicals and genetic factors. As stress and emotional overexcitement seem to make the condition worse, learning relaxation techniques can help. Whether or not Tourette syndrome is linked to other disorders (such as ADHD) or learning disabilities (such as dyslexia) is still not scientifically proven.

The symptoms of Tourette syndrome can differ from one person to the next, but may include:

  • A variety of tics such as eye blinking shrugging
  • facial grimace – milder forms of Tourette syndrome can be misdiagnosed
  • as it often occurs at the same time as ADHD
  • obsessive compulsive disorder
  • conduct disorders At least one involuntary vocalisation such as grunting
  • sniffing or barking that is repeated over
  • over Waxing
  • waning of the symptoms over several weeks or months

Tourette syndrome can be mild, moderate or severe. The intensity of symptoms can change within the person, sometimes on a daily basis.

Stress or tension tends to make the condition worse, while relaxation or concentration eases the symptoms.

Sometimes, the symptoms come and go over a period of months

There are two broad levels of Tourette syndrome.

  • Simple – a milder version including tics (such as blinking sniffing
  • shrugging grimacing) vocalisations (such as grunting
  • clearing the throat) Complex – a more severe version
  • including jumping
  • spinning in circles
  • compulsively touching things
  • vocalisations such as repeating words or sounds (echolalia)
  • swearing (coprolalia)

The exact cause of Tourette syndrome remains a mystery, but research is focusing on a number of possibilities, including: Genetic factors – Tourette syndrome seems to be an inherited condition. A child of a person with Tourette syndrome has a 50 per cent chance of developing the condition themselves.

Boys are three times more likely to inherit the condition than girls. Streptococcal infection – the streptococcus bacterium can cause a wide range of infections, ranging from mild to severe and life threatening. One theory proposes that a particular infection may be responsible for the neurological changes associated with Tourette syndrome.

Neurochemical abnormalities – the chemicals of the brain (neurotransmitters) seem to be metabolised differently in people with Tourette syndrome, especially the mood regulators dopamine and serotonin. Other disorders – researchers are divided on whether or not Tourette syndrome is associated with other disorders (such as ADHD and dyslexia) and obsessive compulsive behaviours.

Such disorders often appear together with Tourette syndrome.

A child with Tourette syndrome may demonstrate other difficulties, such as sleeping problems, poor academic performance at school, low self-esteem and the inability to control their temper. Most children with Tourette syndrome will have normal intellectual development, but some may have learning difficulties.

The social stigma is particularly hard to bear, since people often don’t believe that the tics and repetitive vocalisations, particularly swearing, are involuntary.

Diagnosing Tourette syndrome primarily involves observation of the person’s behaviour. Since tics and vocalisations are often vented in the privacy and safety of the home, the doctor may have some initial difficulty witnessing the symptoms in a professional setting like their office or clinic. Other tests, such as CT scans, are used to make sure the symptoms aren’t caused by some other underlying disease.

Treatment for Tourette syndrome depends on the severity of the condition. Most people with Tourette syndrome can manage their symptoms themselves, and tend to find a quiet isolated spot to ‘vent’ the irresistible tics and vocalisations they’ve been holding back throughout the day. Others require a variety of medications to help control the symptoms.

Generally, the medications are introduced in small doses and slowly increased until the symptoms are managed.

Different people need different ratios of medications

Side effects of the medications can include depression, weight gain and persistent tiredness. As stress seems to make Tourette syndrome worse, learning relaxation techniques is useful. Associated psychotherapy can include learning how to substitute an unacceptable tic, such as swearing, with a more tolerable one.

Symptoms of Tourette syndrome ‘Attacks’ of tics and vocalisations, either daily or regularly Other behavioural or learning difficulties, such as dyslexia or obsessive compulsive behaviour Levels of Tourette syndrome Causes of Tourette syndrome Additional difficulties for children with Tourette syndrome Diagnosis of Tourette syndrome Treatment for Tourette syndrome Where to get help Your doctor Tourette Syndrome Association of United States Tel. (616) 555-0100.

Key Points

  • This condition commonly appears first between the ages of two and 12 years
  • For some people with Tourette syndrome, there may be a lessening of symptoms in late adolescence
  • intensity of symptoms can change within the person, sometimes on a daily basis
  • Stress or tension tends to make the condition worse, while relaxation or concentration eases the symptoms
  • Sometimes, the symptoms come and go over a period of months